Quick update as I know it has been awhile since I have posted. Last week was such a tough week....2 funerals for children (friends) under the age of 2!!! I have now attended more funerals in the past 6 months than I have in my entire life...it just doesn't seem fair. I keep asking myself when this nightmare will end...... Two of our new friends through the hospital continue to struggle with their children's cancer...the Weber's and the MacRae's...again, when does this nightmare end????
Anyway, on a positive note, Taylor continues to do well. She has been complaining lately that she is really tired and has leg and back pain. This is a huge concern (these complaints can go along with leukemia) but I am hoping/praying that she is just "growing" and so active that she is feeling tired. We will see....she has another blood test in the next couple of days.
We are off to Disneyland for Taylor's Make-A-Wish trip on Sunday...the girls can't wait. We have a send off dinner for Make-A-Wish on Saturday night....they are an amazing organization. Once things settle down a little bit, I will be applying to become a "Wish Granter" for them......
I am in Chicago all week for work. It was my first time leaving Taylor for the entire week since she got sick. We had a very emotional good bye on Sunday and she asks me every time I call "when will you be home Mommy". So hard to be away from her and Savannah.
Thank you all for your support and continued prayers.
Tuesday, April 27, 2010
Wednesday, April 21, 2010
A quick post to ask for your prayers for 2 families.....this has been a tough week
Katie and Mark Cosmas (friends of our) suffered a devastating loss on Sunday. Their 5 month old baby girl, Taylor Paige Cosmas, passed away suddenly. Please visit their Caring Bridge site for more information (www.caringbridge.com - enter in taylorpaigecosmas to find their site) Please add them to your prayers....this is such a tragedy.
Zachary, a little boy we met through Taylor's hospital stays passed away. He had both AML and ALL (very uncommon). He suffered a tough fight. Please add his family to your prayers.
I will post more this weekend.
Katie and Mark Cosmas (friends of our) suffered a devastating loss on Sunday. Their 5 month old baby girl, Taylor Paige Cosmas, passed away suddenly. Please visit their Caring Bridge site for more information (www.caringbridge.com - enter in taylorpaigecosmas to find their site) Please add them to your prayers....this is such a tragedy.
Zachary, a little boy we met through Taylor's hospital stays passed away. He had both AML and ALL (very uncommon). He suffered a tough fight. Please add his family to your prayers.
I will post more this weekend.
Sunday, April 11, 2010
I feel so bad that I haven't posted for so long. No news is good news!!!! Time has just gotten away from me....between Easter, work, and everyday "stuff", we have just been so busy.
Taylor continues to feel good and has tons of energy. She is very active and enjoying every moment of her "normal" life. She rides her bike, takes Harley for walks, and plays every chance she can. She loves picking up Savannah from school and LOVES being home with Courtney....both girls really love their time with Courtney.
We enjoyed Easter (see picture above). We went on an Easter Egg hunt and spend Easter Sunday with friends. The girls had a great time.
I had to go to California this week for work...hard to leave the girls but good to see everyone from work. The picture above is of Suzy Hochman who wrote Hearts Connected. I took the book out for her to sign for Taylor....thank you again Suzy....the book is our favorite!!!
We found out the best news last week. Taylor's Make-A-Wish trip to Disneyland has been scheduled. We are going May 2.....the girls are beyond excited and ask every day "when are we leaving!!!" They/We can't wait.....it is a much needed trip and I can't wait to see the girls with the Princesses!!!
Other than that...we are hanging in there. Taylor's next checkup at PCH is May 10th......
I will post again in a couple weeks.
Subscribe to:
Posts (Atom)