Loving Taylor

TFIG - Taylor had a decent day today. She was very tired and she complained of a stomach ache all day. She ate, but not much. A couple of bites only at breakfast and lunch but did ok with dinner. She is much more tired than before....I think it is a combination of the chemo and Influenza. Her poor little body has just had enough.

She start a new chemotherapy tomorrow. It is one that she hasn't had before and the dosage is high. The most common side effect are liver problems and cardiac problems. So...as you can imagine, that is enough to really freak me out. They will monitor her liver closely during treatment. She will receive this chemo for 4 days. She had an EKG and ECHO done to get a baseline for heart function. This will be checked again during this round to make sure there was no damage to her heart. The chemo is bright blue and there is also a chance the whites of her eyes will turn yellow from the chemo. Her urine will also turn blue. I have worried about this chemo all day. Sometimes I just ask myself what we are doing.......the side effects of these drugs scare me as much as the leukemia does!!! The problem is what other choice do I have....she has to have the chemo.

Although Taylor had a good day and was in a good mood, I couldn't stop worrying about Elijah......I am so scared for his family. Bone marrow transplant is now my worst nightmare. I think about it all the time. I know there are MANY successful transplants but all I can seem to think about is the ones that have not gone well. I just pray that we will not go to transplant....it really scares me.

I am planning on going home for the day tomorrow to be with Savannah. I just miss her so much. I will come back and sleep again at the hospital. I don't like to leave while Taylor is getting her chemo. Papa (my dad) is in town and surprised Taylor and I at the hospital tonight. She was SOOOO excited and can't wait to see him again tomorrow. Two of Taylor's RN's from the second floor stopped down tonight.....thank you both so much....you made her day!!!!

So...day 3 is done. Hopefully Day 4 will go smoothly.

Have a great weekend,
Kristen