Loving Taylor

Hello all - after a much needed 23 hour break, I am back with Taylor. She had a good night and day today with "Special Grandma" (as Taylor and Savannah call my mom!). She had a transfusion last night and did fine. She was given Benadryl before bed to help her sleep last night....finally she slept for 11 hours!!! It was much needed by Taylor. She didn't nap today but feel asleep about 5:15 watching TV. She is getting a platelet transfusion tonight and will be given Benadryl again with this...so I will let her sleep right now. Her blood counts are even lower today. She will continue to go down and it will take 8 - 10 days to come back up. Today is her final day of chemo (YEAH) this round. The doctors tell me they actually feel worse after chemo because their blood counts drop so low. They can also feel very achy from the chemo...I am praying she doesn't go through this.

After much thought and debate (and advice from doctors), Sean and I have decided that we are going to ask for no visitors until her blood counts begin to rise. The doctos have warned us to especially shy away from children visiting right now...there is just too high of a risk for infection from children. I am so sorry to not be able to see all of you for a week or so but think it is best for Taylor. Because people can be "carrying a cold or bug" for about 3 to 4 days before they show signs and symptoms, it is best to keep her away from everyone for now. Her risk of infection is so unbelievable high and a small bug could send her straight to the ICU....which would push me over the edge and could be life threatening for her!! So....once she is on the rise again, I will let you all know and we will be anxiously awaiting visitors again....thank you for understanding.

Many of you have reached out and asked what Taylor and I need right now....thank you so much for your generosity. Because we have been blessed with so many good friends and have received so many fun presents for both girls...we are good right now. I know that Taylor and Savannah would LOVE to get new stuff when we come back in for round 2 but have enough right now. Because room changes are so common, I am trying to scale down in the room. A room change is SO much work for me and if we move our next room will be smaller. Please know we appreciate everything you all have done....thank you!!!!

After reading my post, please scroll down and see the post from my good friend Sheri....she has posted the "charms" from Moda Fina. They are so adorable!!! To our friends at Moda Fina - thank you so much. I can't believe you have done this for Taylor....you guys are amazing!!!

I hope you are all having a great start to your week.

We love you,
Kristen and Taylor