Donations can also be made at any Wells Fargo branch:
Project Souza Family
Account number 186-527-1579
Or you can mail a check to
Souza Family
PO Box 28272
Scottsdale, AZ 85255

This blog was created by friends as a way for the Souzas to share Taylor's progress with us. Kristen and Sean have not asked for financial help, but their medical bills coupled with Kristen's loss of income is truly overwhelming. They are so appreciative of ALL of the different types of support they have received and are more grateful than you can know. Thank you!
Taylor is a beautiful, vibrant three-year-old girl who was recently diagnosed with acute myelogenous leukemia, a fast-growing cancer of the blood and bone marrow. On June 18th, Taylor began an 8-10 month hospital stay. This blog will detail her journey back to good health!


Sunday, June 28, 2009

Hello everyone- quick post as I am getting ready to go home to spend time with Savannah. Taylor was given Atavan last night at bedtime for anxiety and had a bad reaction. The medicine made her weepy and she cried most of the night. She was scared from how it made her feel....so no more Atavan.

She has to take Bactrim (an anitbiotic) on Saturday and Sundays to ward off infection. She spit both doses out yesterday and her morning dose today was thrown up. So...they are talking about putting a NG tube down her nose for oral medications. I of course am not advocating for this but if it would mean she would not fight so badly with the oral medications, it might be worth it.

She is getting platelets and RBC's today. She will be given Bendaryl with this for possible allergic reactions so at least she will get a little sleep.

My mom will be staying with her today.....thank you to Grandma!!

Hope you all had a great weekend. Will let you all know how she is doing when I get back tomorrow.....

XOXOXO
Taylor and Kristen
Posted by at

10 comments:

  1. AnonymousJune 28, 2009 at 4:48 PM

    Kristen,
    my heart is just breaking that you and little Tayor had such a rough weekend. I only hope and pray that getting platelets and RBC helps her to feel better. I am glad that you are getting a night with Savannah. Keep up your strength-so many people are thinking of you, praying for you and loving you every moment of every day!
    XOXO
    Jess

    ReplyDelete
  2. Blog OwnerJune 28, 2009 at 6:32 PM

    It was great chatting with you today and I'm keeping my fingers crossed that I'll get some Taylor and Savanna time on Thursday! Glad you're home tonight. I think Sean and Savanna need you at home for a night, but I think that YOU need Harley! Hope some puppy love comforts you.

    Sheri

    ReplyDelete
  3. AnonymousJune 28, 2009 at 8:07 PM

    You amaze me everyday! Our daily prayer goes out to the Souza family...we love you!

    Krista

    ReplyDelete
  4. AnonymousJune 28, 2009 at 8:24 PM

    Taylors illness has touched so many lives. Special Prayer Request was give to our congregation today for Taylor. We will keep trusting that improvements are on the way.
    Jocelyn ( Shelly B's Mom )

    ReplyDelete
  5. AnonymousJune 28, 2009 at 9:28 PM

    Kristen and Family - It is obvious that you have a huge circle of support and love around you. Take strength and comfort from that. All the prayers and the love can and will move mountains. Have faith and one day this will all be behind you. In the meantime, I continue to keep you all in my prayers.
    ~Karen DeWitt

    "The power of love to change bodies is legendary, built into folklore, common sense, and everyday experience. Love moves the flesh, it pushes matter around.... Throughout history, "tender loving care" has uniformly been recognized as a valuable element in healing." ~Larry Dossey

    ReplyDelete
  6. elisa PinkusJune 28, 2009 at 11:07 PM

    Thinking of you all...thank you for keeping us updated on Taylor and everyone! I will try giving you a call tomorrow . xoxox Elisa Pinkus (Haileys mommy)

    ReplyDelete
  7. UnknownJune 29, 2009 at 4:02 AM

    I was so sad when i found out about Taylor! I think of you all often and my heart goes out to you guys! Taylor is lucky to have such great parents and a wonderful sister. Hoping that everyone had a better night sleep. Lisa Locke (gee)

    ReplyDelete
  8. UnknownJune 29, 2009 at 6:27 AM

    You're in our thoughts and prayers every second of the day!!! Hope Tay Tay~ will feel better very soon!!!!!!! Girlz cannot wait until we all can have a playdate with you...

    Sweets, if there's anything you ever need, you know my number...

    Hughs & kisses

    ReplyDelete
  9. kathy cutchinsJune 29, 2009 at 8:38 AM

    My one yr old daughter was in ICU for five days around Easter and they did ALL antibiotics thru her IV. WHY wouldn't they do that with taylor first, instead of the NG tube? I would think the NG tube would really not be fun and cause even more anxiety for taylor with meds. I don't claim to know anything about meds but my one yr old never had to struggle with the med part b/c they put it in the IV.

    wishing you a better day and many prayers,
    Kathy (cindy's friend)

    ReplyDelete
  10. AnonymousJune 29, 2009 at 9:51 AM

    I am reading each of your updates and sending you all - you, Taylor, Savannah and Sean - love, compassion, strength, healing and miracles. Thank you for sharing yourself, and all that is there for you about this, with us. We really care and appreciate you. Much love ~ Conde, Don, Alexa and Grace Rogers

    ReplyDelete

Subscribe to: Post Comments (Atom)