Loving Taylor

Well, I am not sure where to start. So much has happened in the last 24 hours. It all started last night while Taylor was getting her blood transfusion. During a transfusion, they check blood pressures every hour to make sure all is ok. Taylor had 3 really low pressures that were a little concerning. Then, her last bp came back up and she seemed fine. She slept pretty well but woke up feeling really sick. She threw up first thing this AM and started rubbing her eyes constantly. With in about an hour of waking, her eyes were extremely red, swollen, and the skin around her eyes was red and blotchy. She was screaming that her eyes hurt and didn't want any lights on. She also had a runny nose. She has been getting eye drops every 4 hours since last Wednesday because of one of the side effects of the chemo that she received is conjunctivitis. So.....they weren't really sure what was going on. Her eyes looked terrible and she was very uncomfortable. They gave her a dose of Benadrly around 11:00 to see if this would help. It did not. As the day continued her eyes got worse as did her runny nose. She would NOT let me put her down or let me out of her sight. We found a rocking chair and I rocked her for about 2 hours while she covered her face with a blanket. Around 3:30, they decided to give her a dose of Claritin (by mouth) to rule out possible allergies. She threw the medicine right up. So.....they got her a dose of Claritin in pill form and we crushed it and she took it in some yogurt. She kept that down but it really didn't seem to help.

They gave her another dose of Benadryl at 6:30 and it knocked her out. Her previous rash has now come back and is covering her face and body. At least she is sleeping.

The plan now in the morning is to move her to the 3rd floor into an isolation room. She will receive a nasal swab to test for 9 different viruses. She and I will stay in isolation until the virus test either grows something or doesn't grow something. If it does, she will be given the necessary treatment and if it doesn't show anything, we will hopefully be moved back to the 2nd floor (we would stay in isolation either way for a couple of days). Her eyes are really painful to even look at....you can just tell how much pain she is in. She can't even watch TV because the light hurts her too much.

The doctor has asked for no visitors until we get this all figured out. Because her body can't fight off any infections, we have to be extra careful right now. Unfortunately, Sean, Savannah, or Grandma are not even going to be able to visit until this is figured out.

So...please pray...this is very scary and she is not doing very well.

I will post more as I get more information. Thanks to Sheri for sending out a message to everyone today.

Love,
Kristen