What a long day today was!!! Taylor had to get platelets...she was dangerously low. She actually needed them yesterday but they held off because the hospital did not have the exact match but because she was even lower today, they had to go ahead and transfuse with platelets that were not an exact match. The risk of not transfusing was that she could spontaneously start bleeding or have a bleed that would not stop. She also has bruises from head to toe and this is from her platelets being so low. So.....we went ahead and gave her the platelets that were not an exact match and things went well. There was a higher chance of reaction with these platelets but she was given Benadrly and Tylenol. All that matters was that she did fine. It is just scary knowing what could happen. She will most likely need a RBC transfusion tomorrow. Her blood counts are officially at zero today and you can tell. She is just cranky and not feeling well. She is in bed now watching a movie but probably won't go to sleep before 11:00 because she napped during her transfusion......it is going to be a long night!!!
Now we wait.....I am thinking we probably have about 3 more weeks this round!!! My cousin stopped by today and I ran to the store and it was pure heaven breathing fresh air!!! The days creep by in this place. Luckily the nurses are all so great and help pass the time.
Hope you are all doing well. Thank you for your continued prayers and support.
Love,
Kristen
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There is not a day that goes by that I don't think of Taylor and your family. Hopefully the transfusion will help with Taylor's energy level because I love seeing the pictures of Taylor in her princess dress, and hope to see more. Taylor you are by far the prettiest princess I have seen! Remember there is strength in numbers and we are all behind you......xxoo
ReplyDeleteJoelle Monis
Praying for Tay all the time. We love you guys. Kelly and Carly Kristen, thanks for all the updates even when I know you probably don't feel like it, you are always in my prayers and thoughts. The south florida prayer contingent (my Mom and Dad's church) meet on Wed. nights as well and love the pix of Princess Taylor. Carly says Tay looks like a little teacher, which coming from her is the ultimate compliment. We adore her and you.
ReplyDeleteKristen, Taylor is SO lucky to have you there with her all the time and making sure she gets the BEST care possible. I'm sorry she had a bad day yesterday, but I hope the two of you slept well! We are continuing to pray often for Taylor's return to good health! Stay strong and hope today is good to you guys.
ReplyDeleteLiz Olmstead
Takeda-CO
Kristen,
ReplyDeleteI'm so glad you got some fresh air yesterday! I can only imagine that the minutes slowly pass by when you are the hospital. I hope to see you guys soon when Taylor is feeling better...ZERO-no where to go but up! Sending lots of love and hopes that Tay's counts come back quickly!
Oh please pass along some good news to Tay..my friend Susannah (her maiden name is Taylor), she frosted cookies w/ Tay and I a few weeks ago...she had her baby! A little baby girl, Annabella 6lbs 8oz, 19.5" and just a beautiful baby. Tell Tay I'll bring in pictures next time I get to see you guys!!
XOXO
Jess
Kristen,
ReplyDeleteTaylor is in my thoughts and prayers. I check your posts every night and anxiously await the day where she can go home and enjoy the real world again. (along with yourself) You are an incredible mother.
Sonja De Angelis