Loving Taylor

Happy Wednesday to all!! Last night turned out to be one of Taylor's worst nights. She was awake until 1:30 am. She started in around 9:00 with crying uncontrollably. I finally got her to stop crying uncontrollably but whimpered and cried until the RN finally gave her Benadryl at 1:00. By 1:30 she was asleep but awake again at 7:00.....so, it was a long night for both of us. She still has mouth sores and her body is really hurting. Her counts are still at zero with no sign of rising.

Before I left for work, the oncologists mentioned they were a little concerned that she had been at zero for so long. They are going to see what happens tomorrow but we might have to give her something to give her a "little help." I am not sure what that is but will find out tomorrow. She is receiving a packed red blood cell transfusion right now so hopefully will feel a little better tomorrow. They had also talked to me about giving her more morphine today but they decided against it because her blood pressure was a little lower than they would like for pain medicine. So...she didn't get any pain meds today and she did ok.

On a positive note, our friend Dawson Merrick, who is downstairs in the ICU had a much better day. He is going to be off of his breathing tube tomorrow (hopefully) and is getting better every day. Our other friend, Kate Mcrae, got to go home today. She was our neighbor during our second stay. Her mom and I have become great friends and Taylor and Kate love each other. They actually look alike and everyone thinks they look like sisters. Kate has a brain tumor but is doing well. Her family is an amazing support system to me and her Mom is a great friend. Please pray for both Dawson and Kate...we love them both. To read more about Dawson and Kate, please go to Caring Bridge and type in Dawsonmerrick (no space) and Katemcrae (no space)....their stories are amazing!!!

That is all for tonight...hoping for a better day tomorrow.

Love,
Kristen