Donations can also be made at any Wells Fargo branch:
Project Souza Family
Account number 186-527-1579
Or you can mail a check to
Souza Family
PO Box 28272
Scottsdale, AZ 85255

This blog was created by friends as a way for the Souzas to share Taylor's progress with us. Kristen and Sean have not asked for financial help, but their medical bills coupled with Kristen's loss of income is truly overwhelming. They are so appreciative of ALL of the different types of support they have received and are more grateful than you can know. Thank you!
Taylor is a beautiful, vibrant three-year-old girl who was recently diagnosed with acute myelogenous leukemia, a fast-growing cancer of the blood and bone marrow. On June 18th, Taylor began an 8-10 month hospital stay. This blog will detail her journey back to good health!


Tuesday, August 4, 2009

We are officially at Zero!!! Her WBC is at zero and her ANC (Absolute Neutrophil Count - which determines if we can leave the room or not) is at zero. So...now we wait. Taylor will most likely hold around zero for a week to 2 weeks and then come up. She needs both platelets and a packed red blood transfusion either tonight or tomorrow. Her platelets are so low that she is starting to getting little red bumps (Petichia) all over. This means that her blood is not clotting enough. If she doesn't start bleeding (her nose, gums,etc) then we will wait until tomorrow, if she does start bleeding it will be done STAT! So, we are living in as sterile bubble right now. I am sterilizing everything that she comes in contact with and we are now giving her sponge baths 2 times/day. She is so susceptible to germs right now that I am trying everything I can to keep her infection free!!!

She is still in great spirits. She played all day and enjoyed time with her new roommate. She really wants to get out of her room but no such luck!! Other than that...we are just hanging out waiting for her counts to rise up!

That is all for today...we hope you are all doing well.

Love,
Kristen and Taylor
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3 comments:

  1. AnonymousAugust 4, 2009 at 8:45 PM

    I'm thinking about you guys and praying that Taylor will remain infection-free! Hope you can find some fun things to pass the time until she can run the halls again! :)

    Take Care!

    Liz Olmstead-Takeda, CO

    ReplyDelete
  2. AnonymousAugust 4, 2009 at 10:46 PM

    I am glad to read that though you have to wait to bring Taylor home, that at least she is happy and playing well. I will pray for NO INFECTION and a quick rise in those levels...I am sure Taylor and Savannah are so excited to see each other and play at home! Again, your strength and spirit continue to amaze me!

    Have a good rest of the week!

    XOXO
    Suzy

    ReplyDelete
  3. AnonymousAugust 5, 2009 at 8:37 PM

    Hi Kristen and Taylor,
    We continue to think of your family everyday and pray that Taylor's blood count will rise quickly so she can have a "vacation" back home. We are also looking forward to Taylor's Golf and Dinner event at the end of the month. What a special event it will be!

    Take care,
    Jenn, Brad, Addy and Chase

    ReplyDelete

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