Hello all - very quick post today. Taylor has been up since 6:40 this morning and is still awake (at 9:20). She is watching a movie right now as I am typing, but I need to get her to sleep.
She received platelets and packed Red blood cells today. With each, she received a dose of Benadryl and still hasn't taken a nap and won't sleep! We also just gave her tylenol because she is complaining of a headache. She is very close to spiking a fever, so it is going to be a LONG night.
She is still in great spirits and going like crazy!!!
I will post again tomorrow after we have gotten some sleep (I hope!!)
Love,
Kristen
Wednesday, August 5, 2009
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Bonjour Kristen and Taylor,
ReplyDeleteWe hope you read this post after a good night sleep...sounds like you both could use the rest! Glad to hear Taylor's spirits are high, she gets that from her loving mama!!!
We are praying that all of your sterilizing pays off and Tay stays infection free!
Stay strong Souza family...you are all so amazing and constantly in our thoughts !
Love,
Laurie, Troy, Nathan and baby Allison
Kristen,
ReplyDeleteAs soon as I got home from seeing you at the museum I went directly to Taylor's blog. I've just spent over an hour in tears. I had no idea that you,Taylor and your family are going through all of this.You are a very strong woman that still manages to keep a smile on your face.Taylor is so fortunate to have such an exceptional mother.
As you know,the mouth sores,gum inflamm,etc... are expected due to the chemo. It's just so important to keep her oral hygiene up with brushing even though it's extremely painful.I know her gums are probably bleeding by the slightest irritation and must be so sore.Stay with the Biotene rinse.It's so important! A Fluoride rinse would also be helpful to prevent decay due to the dry mouth.Check with her physician on that.I've treated one cancer patient(25yrs old) and we made custom fluoride trays for him.It didn't get rid of the inflamm but it slowed down the decay.Enough of my shop talk. You,your family and most importantly your little trooper Taylor are in my thoughts and prayers! God bless all of you.
Love,Sonja