Hello all - hope you had a great weekend. We had a crazy couple of days at the hospital but things are back on track now. I went home on Saturday to be with Savannah and was called back down to the hospital on Saturday evening because Taylor had to change rooms. So, I came back down to help my mom move her into her new room. We got her settled around 9:30 and I was off to sleep in my own bed. I received a call on Sunday that we were being moved again...so much fun!! The kicker is that we got moved back into the room we moved out of the night before!!! Anyway...the good news is that we are back in the biggest room on the floor and have a nice, new roommate.
I got back to the hospital early this morning to find Taylor's count at 8 or as close to zero as she can get. So....now we wait and pray that she doesn't get a fever or infection. She will probably hang around at zero for about 10 days and then start to come back up....once we get to 250, we will be home for our second break....yeah. I hope that we will be home in about 2 1/2 weeks!! Taylor is doing really well. She has a ton of energy and is in GREAT spirits. Because her counts are so low, we are going to go back to our "bubble" and ask that we have no visitors until her counts come back up (I will let you all know)!! She is just at such high risk for infection that we are going to be extra careful.....thank you all for understanding!!
So far she hasn't gotten any mouth sores....lets pray it continues on this way!! Her hair is a little bit thinner but hanging in there!!! She does have her rash that she got last time but it comes and goes...it also does not bother her. She is really doing amazingly well!!
Again, thank you all for the great presents for Taylor and Savannah this round. They love their new crafts and we appreciate your generosity!!
Please say an extra prayer for our friend, Dawson Merrick. He is in ICU going through alot right now.l Dawson - we love you and are praying for you every day. We want you to come back up to the 2nd floor and be our neighbor!!
Love to all,
Kristen and Taylor
Monday, August 3, 2009
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Kristen - I am so glad to hear that Taylor has energy and is doing so well. I will pray that you two get to come home as soon as possible! Jessica told me how cute she was when she sat with her last week and how she just wants to bottle up her cute little voice! Without even knowing you, I know that you are all amazing and I am praying for you all often. Keep doing what you're doing and one day you will look back and realize what you made it through. I know good things are in store for you.
ReplyDeleteKaren DeWitt
Hi Everyone! It sounds as though things are going as well as you can expect....that is wonderful. I am so proud of Taylor, she is truly amazing! Is she still digging spicy hot cheetos?
ReplyDeleteI was hoping to visit this week but understand how important it is that Taylor not be exposed to anyone who might be sick as well as both of you needing your rest and privacy. Don't ever feel bad for doing what is best her and your family. I'll keep the texting and emails to a minimum as well so you don't have so much to reply to.
If I can help by having a pizza and a bottle of wine delivered for you...just say the word!!!
Miss you all sooo much! Love Miss Amy
PS Tell Tay that my Emily says hi!
Just wanted you all to know that I have been praying for you all daily and how much we appreciate the opportunity to do so. My daughter Katie was diagnosed with stage 4 wilm's tumor (kidney cancer) on November 19 2007. We have been in remission now 1 year and 2 months (not that you keep track or anything) She had a really rough go of it for most of the past year and a half , but just recently found a medication that has helped tremendously. So hard to understand what people mean by day by day/hour by hour unless you go through something like this. I tried my best to embrace the small glimmers of light as they presented themselves, even when the tunnel feels so very dark. It sounds like you are doing the same. Taylor will greatly benefit from your positive energy. Be strong and we will all carry you through this journey. Cancer brings a whole new family into your life. We post on Caring Bridge.
ReplyDeleteHave a blessed day!
~Deanna Doty (HopeKid mom to Katie Doty)