8 days of chemo are finally finished!!! Taylor (and I) both got a good night's sleep last night and she had a good day. She was feeling really well. She played alot with Grandma and had a special visitor in the play room. A gentleman named Larry volunteers his time here and does face/arm painting and magic tricks for the kids. Taylor got Strawberry Shortcake on her arm and Savannah got Hello Kitty. They both really enjoyed Larry and Taylor can't wait until next Thursday when he will be here again. She told me tonight that she is going to have "Mommy" painted on her arm next week...that should be interesting!!!So...now we wait!!! Her counts actually came back up today, which means our stay will probably be a little bit longer this rounds....probably more like 5 weeks instead of 4!!!
We did get the results of the "cytogenetics" today. Her chromosomal mutation was "mildly affected" in a positive way. What this means is that she did not flip to high risk, but didn't flip to low risk either. The doctors are very pleased that their was a positive impact but not to the extent they were hoping for. At this point, I still look at it as good news....positive is better than negative or no effect at all!! So tonight as I post, her treatment will stay the same until we have the results of round 2 (which will most likely be early September).
We are still hanging in there and she is feeling better than I expected.
Hope you all had a great Thursday.
Love,
Kristen
Thursday, July 30, 2009
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Sorry to hear the test results were not super news, but you've got a wonderful attitude! Okay news is better than bad news! You guys are constantly in our thoughts...
ReplyDeleteKristen,
ReplyDeleteO.k...sounds like things are maintaining...I am sorry that the news did not swing to a more positive light; however thank GOODNESS she is has not transitioned to high risk!
Your attitude continues to astound...call if you need anything.
XOXO
Suzy
Keep staying positive, I know your attitude is helping Taylor keep up this fight! I am convinced that the results of round 2 will be better...they will be Taylors b-day present to her loving mama!
ReplyDeleteYou are amazing- so strong!
Glad the girls had a good day w/ volunteer Larry.
Has Taylor "got you" with the green polish yet? :-)
Love to all the Souzas!
-Laurie T
Kristin-
ReplyDeleteGlad to hear that this round is finally over and things are stable (hopefully moving to a positive direction). Please know that you all continue to be in our thoughts and prayers.
Love-
Steve and Mercedes
Hi Kristen, Taylor, Sean, and Savannah!
ReplyDeleteTaylor, I think you should get "mommy" painted on you arm next week!! What a fun idea!! Savannah should get Daddy or maybe even Harley!! Ha ha!
Glad to hear the positive news. Always, Shauna, Gustavo and Santo