Loving Taylor

TGIF!!! I am happy to report that Taylor and I had our first good day in a long time. She received a transfusion last night and it really helped her feel better. The docs had told me that transfusions were always a "pick me up" to the kiddo's and this one really was for Taylor. She ate well, drank juice today (hasn't been drinking anything but water for weeks) and played a lot. Her counts are finally creeping up....very slowly!! The doctors said that there is a small chance we could be home for our first break next weekend (very small) but it gives me some hope!!!

The only "bad" part of our day was when I had to change the dressing on Taylor's central line. I tried to put myself into my "nursing mode" (haven't been a RN for 13 years)but their is no "nursing mode" when it is your own baby!!! It was really hard but we got through it. Mommy cried just as hard as Taylor.....but it is done and we are good for another week. I used to love Fridays, now I dread them...they are dressing change day!!!

Daddy is with Taylor tonight and tomorrow night. I need some much rest/sanity and Savannah/Harley time. Savannah and I got our nails done and had In-N-Out tonight...very fun. We have a birthday party tomorrow and we are going to have a movie party tomorrow night. She wants to make popcorn, watch Cinderella, and sleep in Mommy's bed...twist my arm!!

I am praying that we will be open for visitors next week. Once I talk to the doctors on Monday AM, I will let you all know.

I am most likely not going to post anything tomorrow....going to spend all my time with Savannah. I will provide an update on Sunday night when I get back to my "other home".

Have a great weekend.
Love,
Kristen