Donations can also be made at any Wells Fargo branch:
Project Souza Family
Account number 186-527-1579
Or you can mail a check to
Souza Family
PO Box 28272
Scottsdale, AZ 85255

This blog was created by friends as a way for the Souzas to share Taylor's progress with us. Kristen and Sean have not asked for financial help, but their medical bills coupled with Kristen's loss of income is truly overwhelming. They are so appreciative of ALL of the different types of support they have received and are more grateful than you can know. Thank you!
Taylor is a beautiful, vibrant three-year-old girl who was recently diagnosed with acute myelogenous leukemia, a fast-growing cancer of the blood and bone marrow. On June 18th, Taylor began an 8-10 month hospital stay. This blog will detail her journey back to good health!


Tuesday, July 7, 2009

I had high hopes that yesterday was just a bad day and that today would be SO much better. I was sadly mistaken. Taylor spiked a fever in the middle of the night. She immediately had blood cultures drawn and was started on "triples". Triples are 3 extremely strong IV antibiotics. They cover a wide spread bunch of bugs. Because of this, Taylor was put on room isolation for the day. This meant no visitors (daddy, grandma, or Savannah). I had to wear a gown, mask, and gloves each time I left the room. As of about 2:00 this afternoon, her blood had not "grown" any infection, so they thought the fever was just from her blood counts being so low. The antibiotics are being kept running for 3 days as a precaution.

Taylor has developed very swollen gums and is starting to get mouth sores. This is another wonderful side effect of the chemotherapy. Because of this, she really is not eating at all. I am able to get a couple of bites of food down her and some GoGurts. She also ate some frosting off of a couple of cupcakes. She is down almost 2 pounds. The doctors will be talking to me tomorrow about what needs to be done. She will most likely need the NG (down her nose) for nutrition.

She was actually in better spirits today and out of bed most of the day. She is still extremely hard to please but we had a few laughs today!!!

They just did her PM vitals and she has spiked a fever again....not good news. This will mean she is back on "room isolation" tomorrow....oh how fun!!!

Not much good news today....hopefully tomorrow is better.

XOXO
Kristen

5 comments:

  1. Kristen-
    Sorry this has been such a tough few days for Taylor:( I thought about you guys often while we were away. I missed reading the blog:) We continue to keep you guys in our thoughts and prayers!

    love,krista(and all)

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  2. Kristen-
    “The flower that follows the sun does so even in cloudy days”
    -Robert Leighton
    Hang in there. We are thinking about you.
    Love'
    Cami

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  3. Kristen and Sean-
    We know that Taylor will be strong through good days and bad. We pray that tomorrow brings new hope! Know that you are all in our thoughts and Taylor is very much in our prayers.
    Steve and Mercedes Van Pelt

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  4. I found out about your site from Bridget at HopeKids. We will be praying for Taylor and for all of the family as well. It was always amazing to me to receive encouraging words from total strangers and how comforting that was and still is. We recently celebrated our one year anniversary of "no evidence of disease" It never seemed possible while going through it, but here we are cancer free. One day, one bridge, one tunnel at a time. Your light will shine.
    Deanna Doty (HopeKid mom to Katie)
    www.caringbridge.org/visit/katiedoty

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  5. Kristen and Sean,

    Thank you for the blog updates. We check them everyday and continue to keep Taylor and your family in our prayers.

    Always, Shauna, Gustavo & Santo

    ReplyDelete