Loving Taylor

Day 8 and the final day of chemotherapy this round. Taylor received a dose at 6:00 tonight and 6:00 tomorrow morning and then this round will be complete. They usually expect her counts to be at zero about 7 - 10 days after chemo, she will hover at zero for about a week, and then slowly come back home and we will off to break #2. The only thing that would require us to be here longer would be if she got an infection (which is likely!). Her nausea seems to be under control.

We have a REALLY BAD night. She received a RBC transfusion around 10:00 last night. Each transfusion is pre-medicated with Tylenol and benadryl to help prevent a reaction. About two hours into the transfusion, she woke up screaming. She was inconsolable and hysterical. She wasn't reacting the the blood, they think she was possibly having a strange delayed reaction to the benadryl. It took her nurse and I about an hour of "restraining" her until she fell asleep again. We had to restrain her because she was throwing herself around in the bed so badly, we were afraid she was going to crack her head on the bed rails. So.....last night was not great!!! She scared me to death....it was horrible watching her. I spoke with the physician and she will still get benadryl when needed but they will decrease her dose. So....she and I were both really tired today.

Aunt Kerri stayed with her today while I worked and they had a great day. Aunt Kerri got her nails painted, got eyedrops, and did crafts. Taylor's favorite thing to do right now is put eye drops (normal saline) into everyone's eye. She is still getting eye drops so she thinks we ALL need to get eyedrops!! It is quite an experience!!

That is all for today....still no word on the cytogenetics (the extensive testing of her bone marrow!!).

Love,
Kristen