Loving Taylor

Day 37 but who is counting!!!! Taylor had a really hard time going to sleep last night and was up until around 10:30 so she woke up tired today. She started to the day asking for morphine but then really perked up. She got dressed and did a few crafts. The doctors rounded and decided that because she continued to be afebrile that they would start by taking off 1 of her antibiotics.....yeah!!! She also wasn't having much diarrhea so they decided she could try to eat crackers, bread, soup, etc to see how her stomach handled it. She tried a few saltines and seemed to do ok. They also stopped her stomach medicine, Flagyl, because her second stool sample was negative for C-diff. She/I were thrilled about the Flagyl being discontinued because it is given by mouth 4 times/day. Taylor had been having a really hard time keeping the medicine down...she normally threw up at least 2 of the doses....having this stopped was GREAT news.

She was sent down for a Lung CT today. The unofficial results show that of the 2 nodules, one decreased in size by a small amount, and one stayed the same. So....not exactly the news I was hoping for. I obviously was hoping that the nodules were gone. The next step is to most likely consult with a pulmonologist to see what they would like to do. We still don't know if they are bacterial or fungus or even something else. Hopefully we will have this consult in the AM...still very scary.

Taylor tried to eat a little chicken broth tonight and only was able to take a few bites before the diarrhea and nausea started.

I was awake most of the night worrying about what the next step of this process will bring. Now that Taylor is feeling better and she seems to be out of the woods as far as going septic, I am now very concerned about her final bone marrow aspiration. This will most likely happen the end of January. All I can do is pray that Taylor has endured 7 months of brutal treatment for a positive result.....it is just so scary to even think that she went through all of this and the leukemia might not be gone......she still has such a long road ahead of her.