What a change 24 hours can make. After the drama of the Xray and CT last night, Taylor finally got to sleep around 10:30. She slept as well as you can at the hospital and only needed pain meds once during the night. The great news is that she has now gone 24 hours without a fever!!! After 15 straight days of fever, I think they have finally gone away!! I am so excited and she definitely feels better. She continues to have diarrhea and stomach pain. She hasn't needed as much morphine today but still has had some. They have decided that her belly needs "rest" and she is not allowed to eat or drink anything. Her TPN (nutrition) has been changed from 12 hours to 24 hours until we get her belly pain and diarrhea under control.
Her cough continues and at times is worse so she will probably go down for another CT scan tomorrow to see if they can tell what is going on with her lungs. With this brings tons of anxiety.....please pray for her.
She actually got out of bed today and did a couple of crafts and sat on the couch. This is also the first day in about 17 days that she has been awake the entire day. She did not nap once...she actually has some energy. I can't express how much better I feel today...I truly have hope that my "old" Taylor is coming back. So..I pray for an uneventful night....we both need some rest before the CT tomorrow.
Monday, January 11, 2010
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Kristen,
ReplyDeleteWe are soooooo glad to hear Taylor's health is improving. I was almost afraid to read the blog today. I think all the people out there praying for Taylor is paying off. We continue to think of Taylor and pray she continues to become her old self again! May both of you have a peaceful night of rest.
Always thinking of your family,
Jenn, Brad, Addy and Chase
Yay Taylor! No fever and out of bed! We are all praying for a clear CT tomorrow! Hope you both get some rest tonight!
ReplyDeleteCeline and Ella
This absolutely makes my day!
ReplyDeleteSheri
It's 11pm on the East coast.... I closed my computer and headed for bed and then thought- 'better check on Taylor, just in case'. Oh joy! I'm so glad to hear a little positive swing!
ReplyDeleteI'm so glad to hear Taylor had a good day! What great news! We will pray about the CT, her lungs, etc. I hope you're able to get some rest & you continue to report good news.
ReplyDeleteSarah
Thank God! So glad you both had a better day!!!! We will say lots of prayers for healthy lungs. Lots of love, Cindy
ReplyDeleteSo happy to hear Taylor had a good day and it looks as though things are improving. Hoping for a clear CT scan and will keep up the prayers to that end. All of you in my thoughts and prayers every day. Hang in there, better days are coming. xoxo Merilee
ReplyDeleteHi Kristen and Taylor,
ReplyDeleteI received my copy of Hearts Connected today and read it to Nate as his bedtime story. We spent a lot of time talking about how much he loves the girls, hopes Taylor gets well and he wants Taylor and Savannah to be home together again.
That book warmed my heart and soaked my cheeks ;-)! Through all the horror this disease has brought your family, please know that the Souza's are so loved and supported by a tremendous number of amazing people. I can't beleive Suzy wrote that book- it is wonderful!
Here's to sweet dreams about another day filled with more improvements.
With love and hope,
Laurie T