Well, Taylor and I went to the clinic today for her 1st post-treatment visit. When we left the hospital, Taylor's ANC (infection fighting ability) was very high. Today at the clinic, her ANC came back much lower. This is very disappointing for a couple of reasons. She is at more risk for infections and it means that her body is still extremely immunocompromised and still recovering. This means that her final bone marrow aspiration (which will tell us if the past 7 months have put her into remission) will have to be put off even longer. We were hoping that her bone marrow aspiration would be done next week but this will have to wait for much longer. So....we continue to wait and not know where we are at with her treatment. The good news is that she did not need to have any transfusion today. We go back to the clinic on February 5th to have her levels checked again. At this time, they will again decide when they will be able to do the bone marrow aspiration. More waiting....
We are still trying to adjust to being home. It is still quite an adjustment. Today when Taylor and I left for the clinic Savannah got really upset and was begging me not to go. She thought I was going back to the hospital again with Taylor and was leaving her again. She made me promise that I would pick her up from school today. She was so upset....it broke my heart. She feels very left out and deserted. So sad....
Taylor seems to be feeling good, just very tired.
I will post again later this week or weekend.
Thank you all for your continued prayers and support....the waiting and not knowing is so difficult.
Tuesday, January 26, 2010
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Must be a terrible feeling to be torn between the two girls. Hang in there, life will adjust itself sometime soon. We all send heartfelt prayers your way! Carole
ReplyDeleteThe waiting and not knowing has got to be the worst. But ... the time is what you all need to start to get back into a routine. I imagine you feel competely torn in two with each girl wanting ALL of you ALL of the time. Hang in there, they both know you love them with all that you are, the security will return with the normalcy. Praying for the bone marrow aspiration to be soon and to be good news. Oh and Grace asks me to read her the "Savannah & Taylor" story every night. Last night she asked if she might someday get to meet these "special girls" ... Merilee
ReplyDeleteWe know what it's like to wait. :) You will find that the time will go very quickly. You are in our prayers and thoughts.
ReplyDeleteI can only imagine how hard it is to play the waiting game right now. Try to enjoy the moment of finally having everyone home and together at last! We continue to think of your family daily.
ReplyDeleteThe girls are like princess celebrities to Addison. Every night she picks out Hearts Connected and has to say their names over and over again. I told her if she listens to mommy that she might get to visit Taylor and Savannah soon. I also said if she eats broccoli that maybe the girls would autograph her book.
Thinking of your family always,
Jenn, Brad, Addy and Chase
I told the boys today that Taylor was no longer at the hospital. Thomas and Dolan cheered with glee. They were so happy to hear that Taylor was feeling better and was home with her family. We are hoping for only good news in the future. As always you are in our thoughts.
ReplyDeleteLove,
The Maher Family