Donations can also be made at any Wells Fargo branch:
Project Souza Family
Account number 186-527-1579
Or you can mail a check to
Souza Family
PO Box 28272
Scottsdale, AZ 85255

This blog was created by friends as a way for the Souzas to share Taylor's progress with us. Kristen and Sean have not asked for financial help, but their medical bills coupled with Kristen's loss of income is truly overwhelming. They are so appreciative of ALL of the different types of support they have received and are more grateful than you can know. Thank you!
Taylor is a beautiful, vibrant three-year-old girl who was recently diagnosed with acute myelogenous leukemia, a fast-growing cancer of the blood and bone marrow. On June 18th, Taylor began an 8-10 month hospital stay. This blog will detail her journey back to good health!


Thursday, January 7, 2010

Today started with much of the same....she spike another fever last night, threw up and required morphine numerous times. She woke up with no energy at all and her ANC dropped by 10. Mid- morning she did actually get up to the bathroom and wanted to get dressed. She made it back to the couch and spent the majority of the day on the couch sleeping and watching TV. She needed another platelet transfusion today. Her fever continues to burn through the platelets. She actually needed packed RBC's today also but they decided to hold off until tomorrow.

I wasn't going to post any information on the CT scan results until I received more clarification but I have received so many questions that I will go ahead and post what I know. The CT of her belly shows that she has colitis and fluid in her colon. This is what is causing the severe diarrhea and vomiting. This is most likely why her belly is so distended....from the gas. The colitis is most likely from the numerous days on antibiotics and the side effects of some of her chemotherapy drugs. They are "resting" her belly right now. She is only allowed sips of water, crackers and toast. She is also taking Flagyl which should help with the diarrhea. The Flagyl is taken by mouth 4 times a day....so much fun with the way Taylor loves to take medications!!!

She also received a CT of her lungs because she has had a continuous cough. This is the part that is still very unclear. Her results showed 2 nodules in each upper lung. She had a prior CT on December 31 and there were no nodules that were seen. So...what does this mean???? We are not sure yet. Her primary oncologist is coming over to talk to me tomorrow and more tests have been ordered. Obviously having nodules in the lungs is not what we were hoping for. It could be numerous things, from simple to more severe. It could be inflammation, bacterial infection, fungal infection, or other things that I don't even want to think about!! So...until I know more, I would rather not focus on this. Hopefully tomorrow's talk with her Doctor will bring more knowledge and positive results.

Taylor actually ended the day on a more positive note. She agreed to a bath and ate a few bites of crackers. We had to move rooms and she actually helped me pack up a few things and walked to her new room. This is a huge step......she is already sound asleep in bed....she is very weak and doesn't have much energy. She also needed another dose of pain medication a few minutes ago but at least she did something tonight.

As always, please pray for Taylor but I also ask that you pray especially hard for our dear friend, Kate McRae. She had a test today and the results were not exactly what the family was looking for....Kate, Holly, and Aaron- we love you guys and know you will get through this bump in the road!!!

5 comments:

  1. Kristen - Oh..you must be so exhausted. I pray everynight for good news. We are keeping you, Sean, Savannah and Taylor in our prayers. Sending extra positive thoughts for Kate and Taylor. Stay strong, it will get better.

    Julie, Joe, Josh & Zack Eggler

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  2. As always, thanks for the update. I hope tomorrow is a better day for Taylor and Kate.

    Sweet dreams ladies!

    With love, hugs, smiles and HOPE,
    Laurie T

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  3. Your poor little angel. We are sending prayers your way that Taylor will start feeling better soon.

    The Windish Family

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  4. Hi Kristen & Tay,
    Keeping Tay forever in our prayers. I hope tomorrows news is positive and puts you at ease, Tay's belly feels better & her counts start to rise. Kate is in our prayers too :)
    All my love,
    Jess
    XOXO

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  5. Extra prayers for your friend Kate and as always, for Taylor. Stay focused on the positive and hope today brought more good things/steps in the right direction. Hope to be able to see you in a couple weeks. xoxo Merilee

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