Donations can also be made at any Wells Fargo branch:
Project Souza Family
Account number 186-527-1579
Or you can mail a check to
Souza Family
PO Box 28272
Scottsdale, AZ 85255

This blog was created by friends as a way for the Souzas to share Taylor's progress with us. Kristen and Sean have not asked for financial help, but their medical bills coupled with Kristen's loss of income is truly overwhelming. They are so appreciative of ALL of the different types of support they have received and are more grateful than you can know. Thank you!
Taylor is a beautiful, vibrant three-year-old girl who was recently diagnosed with acute myelogenous leukemia, a fast-growing cancer of the blood and bone marrow. On June 18th, Taylor began an 8-10 month hospital stay. This blog will detail her journey back to good health!


Monday, August 31, 2009

Hello all - well, after a really long week, we have more "mixed news". I took Taylor back in today for another bone marrow aspiration. Last Monday her leukemia or blast counts were greater than eight percent. To be considered in remission, you must be less than five percent. Today, she came back as less than 6 percent. So...the question is what does this all mean? There is a not a great answer to this question. Like last week, it come mean one of two things....

First, it could mean that her leukemia has still relapsed and she is not responding. Or, it could mean that her bone marrow needs more time to recover. Like last week, there is a fifty/fifty percent chance. They explained that after a couple rounds of chemotherapy, it can take the bone marrow longer to recover. The cells that they are seeing under the microscope are "immature" cells, so it is difficult to tell if they are leukemia cells or not. I am trying to be positive and be glad that she went from greater than 8 percent to less than 6 percent but it is extremely difficult. They are not able to start chemotherapy until she is less than 5 percent, so we have another week of waiting. At least we are back at home!!

The waiting is so extremely difficult for us. This also means that Taylor will have to have another bone marrow aspiration next week...another "poke", another round of sedative medication, and the waiting!!! She is very nauseated today and threw up in the car coming home from the procedure. Her back (where they poke her) is hurting her so I will giving her pain meds tonight.

All I can say is this week is going to be VERY long (just like last week!).

Thanks for your prayers and support...think we will still be needing them!!

Love,
Kristen

10 comments:

  1. Taylor
    I'm sorry that they had to poke you again! You're such a tough big girl, most adults wouldn't want to be poked like that either!! I loved your pictures from Aleeya's birthday party, you and Savannah looked so beautiful. I loved your bow. I know you feel yucky right now but Kylee and I will pray for you to feel better. Would it make you feel better if Bob brought you a lizard?? No way! Yuck! Crazy kitty!
    I miss you and love you
    XOXO
    Aunt Betty

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  2. Oh Kristen, I want to believe that she is heading in the right direction and it is just taking some time to get below 5...I get what you're saying there. Nonetheless...the waiting has got to be really horrible. I am so sorry that she is sick and throwing up...gosh this just really STINKS!!! Hang in there buddy and thanks for the updates!
    xoxo
    Suzy

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  3. Hi Taylor,
    I know you've had to be poked so many times but you are one of the strongest and bravest kids I've ever met. We all love you so much and pray for you and your family always....Kristen,Sean,Savannah-its been a tough road and you guys have been an amazing support to Taylor...keep faith and we love you all so very much,
    Amay and Sheetal

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  4. Hi Taylor,
    I want you to be all better. I don't want you to have the sick anymore. I want to play play-doh with you! We can try to make a donkey! :-)
    Your friend,
    Nate

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  5. Souza Family,

    Ugh- this stubborn Leukemia! Stay the course, you are all fighting such a strong fight! My heart breaks reading about all these painful pokes for Taylor- I know it is so hard for you as a mama! She is so incredibly brave and it IS paying off. I know todays news wasn't straight forward, but it is better numbers than last week. So... we gotta believe next week will be even better too!

    Love to you ALL!
    Laurie T

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  6. Kristen,
    Stay strong during this confusing time. I can only imagine your frustration right now. The numbers did improve this week and we will keep praying that next week they will look even better! Enjoy your time at home as a family even though it may be hard. I look forward to hearing positive news soon.

    Thinking of your family always,
    Jenn, Brad, Addy and Chase

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  7. Seeing the turn out of what seemed to be well over 100 people last Saturday nite was amazing! There are so many people praying for Taylor. When you are having a moment that you just can't bare..please turn to one of us. I hope knowing how many people are there for you- helps just a little. Love you all! Miss Amy

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  8. Kristen - Thanks for keeping us posted on the blog. I can only imagine how hard it is some nights to type all of the details from your day. If you need anything from me, please don't hesitate to call. I'm right up the street and I drive by your house every day. :-) Maybe a DQ run this week one night? Hugs and Kisses! JT, Jamie, Lauren, Lexi, Grady, Scout, & Madonna!

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  9. Sean and Kristen,
    Taylor and Savannah's pictures from the Birthday party were terrific; how pretty they both looked! I can only imagine how difficult it is to wait for next week's results. Adam and I are saying our prayers daily for Taylor; we are certain next weeks results will be below 5! Enjoy your time at home as best you can.
    Thinking of you,
    Kathleen

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  10. Tons of prayers and positive strong thoughts are coming your way from the Moerings. We love you guys!
    Cindy, Glen, Emily and Colin

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