Loving Taylor

Can't even think straight today...am so frustrated and exhausted. Today was crazy. I spent the majority of the day dealing with insurance issues. Because our insurance and Aetna no longer have a contract, things are getting very difficult. We are hoping to get things resolved soon but today was very stressful....

Taylor was still have stomach problems this morning. She has really bad diarrhea that is uncontrollable. She had accidents all morning and is extremely upset about this. She is so upset that she is having "accidents". So.....we sent a sample down today to be tested and I just got the results. Not good news.....Taylor tested positive for C-difficile. C-diff is a bacteria that lives in the stomach. When Taylor came down with fevers a couple of weeks ago, she was put on 3 antibiotics to treat any possible infection. Even though her blood cultures showed no infection, they continue on with the antibiotics because her immune system is so compromised. She is down to 1 antibiotic that she will continue on with until her blood counts recover. Because she has been antibiotics for so long, it has actually caused her good bacteria in her stomach to be destroyed and C-diff has grown. This causes extreme diarrhea and nausea (which she has been complaining about for awhile now). So.....she will go on another antibiotic to treat the c-diff. This antibiotic will be taken 4 times/day for 14 days. Taylor testing positive for c-diff is not good...her counts came up a little today but only to 10.....she is still pretty much at zero. They are thinking we have at least 7 - 10 more days in the hospital. It just seems like everything has happened this round.....

I also left today to take Savannah to her 4 year well check today. Her appointment went well except for the 4 immunizations she had to get. It was all I could do to watch her get the immunizations......I have had enough watching my children get poked and cry.

Thank you all for your encouraging messages since my post last night. I really appreciate the support. Things are just really piling up right now.......I am having a tough time this round. I continue to wish that I could be lying in the hospital bed instead of Taylor. This truly is too much for any child to endure.....it is just not fair. I so wish it were me and not her.....