Loving Taylor

Well, I wish I could say that things got better after my post last night, but they didn't. Taylor fell asleep around 7:00 (very early for her) but got really restless around 8:45. We checked her temperature and she had spiked back up to about 102. So....after a lot of fighting, we got a dose of Tylenol down her. She was awake until around 12:00 am and then finally fell asleep. Because she is on 3 different antibiotics around the clock, there was alot going on in her room all night. She sleep on and off until around 4:00 and then was awake again until around 5:30. She finally woke up again around 7:30. So, needless to say, she was very tired this morning. She woke up feeling not much better than yesterday. She has not spiked another fever yet today which is great but will still be on antibiotics for quite awhile. She received TPN (her nutrition) over 12 hours last night and will get it again tonight. She is still not eating anything. If she doesn't start eating soon, they will increase her nutrition to around the clock. She complained that her stomach was really upset today so she is also back on nausea medication. She is finally sleeping....thank goodness. Taylor has also gotten a really bad "diaper rash". She only wears diapers at night but because her counts are at zero, she has gotten "mucositis". This is just term for being extremely red and inflamed. It is causing her to be in a lot of pain when she tries to go to the bathroom. She screams and cries. She is now trying not to pee because of the pain. We might have to start pain medication for this. So.....as you can see today is not turning out to be a great day.

I am hoping she sleeps for awhile this afternoon. I am going to try to get a nap in, I also haven't' slept for a couple of nights.