Hello all - I am back at PCH with Taylor after spending some time with Savannah. Taylor is doing ok...her counts are at zero. She is rarely coughing but they are still keeping her on Tamiflu to ensure her symptoms don't come back again. She had a decent weekend but didn't feel well today. She is extremely tired but fighting going to sleep. She is getting a platelet transfusion tonight. Her platelets are dangerously low....she is at high risk for bleeding. She finally starting eating a little bit again. She has lost a little over a pound. Right now there aren't going to put an NG tube down but will re-consider if she doesn't start taking in enough calories. So...now we wait for her counts to re-bound. She will most likely be at zero for a couple of weeks and then slowly her counts will come back up.
Savannah had a tough weekend. The reality of the girls not being able to see each is really hitting her. She misses her sister SO much. Yesterday we were watching a movie and Savannah started crying. I asked her what was wrong and she said she was upset because I wouldn't take her to see her sister. She also asked me "why did God make Taylor sick?" What do you say......??
That is it for tonight....I am going to crawl into bed with Taylor. I hate when she gets transfusion....I worry about her having a reaction. Being next to her while the platelets are transfusing makes me feel a little bit better.
Have a good week...
Monday, November 2, 2009
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Great Halloween pictures! Miss you all! Sending prayers, hugs, and love.
ReplyDeleteG'ma Renee
Stay strong Souza Family. You are in our thoughts and prayers.
ReplyDeleteLove,
The Mahers
Nite nite Taylor...I hope you like having mommy cuddle w/ you!
ReplyDeleteSending love to you ALL!
Love,
Laurie T
Can't wait to see my girl on Wednesday. My nails are ready...all 10 of them!!
ReplyDeleteSheri
Hello girls...we love the Halloween costumes and we hope that Taylor's transfusion goes well and Savannah is at her side again soon.
ReplyDeleteLove-
The Van Pelts
What precious Halloween pics! The girls looked just adorable! I am sure it is so hard trying to explain to Savannah why she can't see her sister. We are praying that Taylor's counts rise as expected and that the girls can see each other very soon! You are taking such good care of Taylor. She is one lucky little princess. Hang in there and know that so many people have your family in their thoughts everyday!
ReplyDeleteGod Bless!
Liz Olmstead-Takeda, CO