Loving Taylor

Day 28 for Round 4 and Day 16 at zero with no signs of her infection fighting ability trending up. Taylor and I are both really feeling the stress of being in our hospital room for 28 days. Taylor is still being such a good girl but I can tell she is very frustrated (as am I). It is so unbelievably hard to not leave this room. At times, the walls feel like they are closing in on us. Taylor had a couple of big melt downs today and I know it is because she just wants out of here so bad (as do I). She felt good today but has some stomach issues start late afternoon. Her stomach is EXTREMELY distended. She doesn't seem to be in pain but her stomach is hard and huge. We will be having a consult in the AM to make sure that something is not going on. I pray it is nothing.....we can't take much more.

Thank you to all the were able to make it out to Cold Stone Creamery tonight....we truly appreciate your support.

Not much else to post for the day...I am really struggling with the reality of Taylor's situation today. Not that it hasn't been "real" for a long time, there are just days that I still have trouble believing that Taylor has AML. The reality of my leave with my job is also totally stressing me out. I don't have much more FMLA time left and am extremely worried about what we are going to do. Taylor is not even close to being done with treatment and then when she is, she won't be able to go back to daycare for quite some time. There are so many questions and no answers at this time..... When Taylor is asleep at night, I try to come up with answers but right now nothing is coming to me???? Christmas is also another big concern right now. There is almost no chance that Taylor will be home over Christmas. The thought of the girls not being together on Christmas is unthinkable!! Too much to think about.......

Thanks,
Kristen