Loving Taylor

Day 33 and Taylor's counts are rising extremely slow. We were really hoping that she might go home early next week but if she continues rising at this pace we will be here quite a bit longer!!!! I am still praying we will be home for Thanksgiving but not even sure about that now.....

I ended up coming back to PCH yesterday afternoon. Taylor was having a hard time with me being gone so I didn't get to enjoy as much time with Savannah as I had hoped. Savannah and I made the most of our time that we had together but it is just so hard to leave her. A good friend of mine, Jamie, is going to come down to PCH tonight around 4:00 and sit with Taylor. Sean and Savannah are going to pick me up for dinner so I can at least see her for an hour or so.

Taylor is feeling good. She had a little stomach issue when I got back yesterday but is better today. She had a really hard time falling asleep last night so she was up really late. I hope that she will go to bed a little earlier tonight. She is ok today for RBC and platelets so no transfusions tonight.

As I was coming back into the hospital yesterday, I ran into one of the other mom's that I have gotten to be friends with. She and I were both having a really hard day. There are times when the whole situation hits you like a ton of bricks and it is hard to even catch your breath. While I was home with Savannah, I noticed that Christmas lights are being put out, stores are getting ready, and the mood is festive. Christmas has always been my favorite holiday but this year Christmas bring the reminder that my child is critically ill with a life threatening disease. What is their to celebrate??? I know that doesn't sound very nice, but it is my reality. Yes, I am thankful for Savannah but it is easy to have blinders on and only see your sick child. I know that next year Christmas will be much better but that seems like a really LONG time away.

Not much else going on around here. Will most again tomorrow or Tuesday.