Loving Taylor

TGIF - I hope you are all doing well. Taylor has had a good couple of days. She received her RBC transfusion with no problem. Her counts are still at zero with no sign of trending up. Today is Day 24 of this round and she has been at zero for 11 days. So....we are hoping that any day she starts getting a few cells and starts to recover. Staying at zero for a long time this round is very common and with her being positive for Influzena it may take her even longer to recover. She is no longer on TPN....she is back to eating on her own. She is doing well with eating.

Tomorrow will be a big day. She will need to be transfused again with platelets. Because of the reaction last time, I am extremely nervous about her getting another transfusion. I know she will most likely be fine and have no reaction but it is very scary. Luckily the RN that helped Taylor through her reaction last time is working tomorrow, so she will be here watching/helping again this transfusion.

Taylor is still on a "high" from her birthday. All she can talk about is seeing her sister!!! Being together was a huge highlight for her....one that she will remember for a long time!!! She/I can't wait to be down with this round and spend some quality time with Savannah.....

As I mentioned a couple of days ago, there will be a charity event honoring Taylor and a couple of other oncology patients on Tuesday, November 17th. 20% of the proceeds will be given back to PCH. Below, I have pasted the press release that is going out about this event:

Local Businesses Raise Funds for Three Children Being Treated at
Phoenix Children’s Hospital

PHOENIX— Three Arizona businesses – Human Tribe Project, Cold Stone Creamery and Phoenix Children’s Hospital – will come together on Nov. 17 to raise money and show community support for three children being treated at Phoenix Children’s Hospital.

Three-year-old Taylor Souza was diagnosed with Leukemia in June after a routine doctor’s appointment lead to the discovery of bruising on her abdomen and legs.
At his routine 4 month pediatrician visit and many tests later, baby Joel Andrews was diagnosed with a rare disorder called N1F1 which affects 1 in 3,000 children.
Leo Weber, 4, was diagnosed with Burkitt’s Lymphoma, an aggressive form of cancer, in August and is currently undergoing chemotherapy.

All three families are finding it difficult to pay the bills, even with insurance. Joel, Taylor and Leo’s families have Tribe Pages on www.humantribeproject.com where they keep friends and family updated and raise money to bridge the gap between insurance and out-of-pocket expenses.

On Tuesday, Nov. 17 Cold Stone Creamery, Human Tribe Project and Phoenix Children’s Hospital will also help bridge this gap by fundraising for Joel, Taylor and Leo.

Cold Stone ice cream will also be handed out to children in the Phoenix Children’s Hospital cancer clinic at 10 a.m.

The fundraising will take place at Cold Stone Creamery on 4290 E. Indian School Rd., in Phoenix. Twenty percent of all proceeds from Cold Stone purchases made between 4. and 7 p.m. will be given back to Phoenix Children’s Hospital. Tribe Tag necklaces will be available for purchases and Phoenix Children’s Hospital will have an awareness booth with additional treats for children.

If you are able and interested, please stop by. We would truly appreciate your support for PCH. They have been so amazing to Taylor...anything we can do to give back to the other children here would be great.

Have a great weekend....will post again later this weekend.