Day 35 and very little movement in Taylor's numbers. She increased her counts by 7 today so we are not much closer to the magic number of "250". We were all disappointed with the increase but at least she went up and not down!! She is feeling good but going stir crazy in the room. Right now she is screaming at the top of her lungs because I turned off the TV. She is really starting to act out.....she is simply done being stuck in her room. Her strength continues to amaze me but she is close to her breaking point.....she needs to go home!!! So.....hopefully tomorrow brings higher counts!!
I participated in a charity event called The Real Gift Foundation with my team at work today. We helped prepare and deliver Thanksgiving food boxes for over 3,000 people. It is such an amazing experience. It was great to be with friends and do something outside of the hospital. Attached is a picture of myself, Marty, Jessica, and Michael. We were at one of the local Phoenix school delivering the Thanksgiving boxes. Thank you to the Phoenix North team for your time......it was great being back together as a team!!!
Another piece of great news......a friend of ours had her one year Transplant Anniversary this week and found out today that she is officially in remission from leukemia. Her name is Maggie and she is Taylor's age. Her family has provided so much love and support to us......we are so happy for Maggie and her family!!!
Love,
Kristen
It was SOOOO good to see you both today! I'm SO thankful to have you all in my life. Tay is a little inspiration to me-how does a 4 yr old continue to teach me new things? If she can get thru 33+ days in one room, I can do anything! I'm SO hopeful you'll be home this week and get the much needed break you all deserve
ReplyDeleteAll my LOVE and tons of hugs!
XOXO
Jess
I am so proud of you and your team! Great Job Phoenix North! What a strong team to volunteer & be so supportive of each other and their community. That 's the spirit!
ReplyDeleteAlways, Shauna
Taylor & Kristen,
ReplyDeleteMay you and your whole family be blessed at Thanksgiving. I continue to pray for Taylor's recovery and strength for you, among other things. I will pray HARD that you get to go home! You are an amazing person to be giving of yourself when you are going through what you are! Sometimes doing that gives us back more than we could ever imagine.
Stay strong and blessings to all of you,
Karen DeWitt
Kristen, one additional thought...
ReplyDeleteif you have two free minutes, watch this video:
http://www.bestwayout.com
Karen DeWitt