Another day of being at zero and not feeling well. We finally got Taylor's vomiting under control last night and she slept ok. She was pretty restless and moaned alot but slept for most of the night. She woke up feeling ok but VERY tired. Her hemoglobin (RBC's) are very low today so she is getting a transfusion right now. She was pre-medicated and so far has not had a reaction. She wanted badly to play today but didn't really have the energy. She watched a lot of TV and rested most of the day. She did have to have her dressing changed. It seemed to be more painful today than usual. Her skin underneath the dressing is so tender and thin from all the dressing changes. You could literally hear her screaming down the halls as they changed her dressing. Not much else is going on....just not feeling well.
We wanted to wish Kate McRae a very Happy Birthday today. She is not feeling well so didn't get to enjoy much of her birthday....we hope she feels better tomorrow.
I am hoping to go see Savannah tomorrow but still not sure if I should. She still has a cough and Taylor has no ability to fight infection so....we will see how Savannah feels tomorrow. I haven't seen her since last Saturday.....too long!!
I forgot to thank everyone for all of the Christmas presents that we have received for the girls. We have not opened any of them yet because we are waiting until Taylor is home and we will be having Christmas together. But....thank you so much for your generosity.
Saturday, December 26, 2009
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Kristen, You guys are always in our thoughts and prayers. I know it sounds so small but we think of you and pray for you guys every day. Poor litle Tay, Carly reads the blogs and just can't believe all that she has had to endure. Neither can anyone for that matter. We miss you Love, Kelly and Carly
ReplyDeleteKristen - Thank you for sharing your pictures of Taylor and Savannah on Christmas. I know it was not the Christmas you were hoping for, but when Taylor is able to go home you will be able to celebrate something much more important. I noticed Sean's beard in the picture...Mark looks like Grizzly Adams. I would love to show you a picture.
ReplyDeleteHang in there, K- Cami McCluskey
Geez Kristen, I can't belive the horrible few days you have had. I had such high hopes that your Christmas would turn out different-better. Both girls sick-man....can't the Souza's catch a break?!? So Christmas is over...now let's focus on New Years and good health for all the ladies in the Souza house!!
ReplyDeleteKristen, you've no doubt had more than you can handle this year...keep taking it minute by minute, day by day and 2010 will be better.
All my love to you all & BIG BIG hugs!!
Jess
XOXO