I wish that I could could post with better news but Taylor is still not feeling well. She had another rough night...she spiked a fever again. Like before, her fever breaks with the Tylenol but starts right back up once the Tylenol starts wearing off. So much happened today, I don't know where to start...
Taylor had a CT scan to try to determine why she was still having fevers. The scan came back clean. They did see some fluid in her belly which was concerning. Some of her labs came back abnormal today....one of them being her albumin level. Albumin is a plasma found in the blood that helps control leaking of fluid out of the blood. Her albumin level was low so this is most likely the reason why she has fluid in her belly. The chemo has probably caused "damage" to her liver which in turn effects the albumin levels. So, she was given an albumin transfusion today. During the transfusion, she was coughing alot and her face started looking a little puffy (which is normal??) from this sort of transfusion. She was then immediately given Lasix (which is a diuretic) to help her get rid of some of this excess fluid. She/I will probably be up all night peeing....yeah!!!
She also had to have a RBC transfusion and platelet transfusion today. On top of that she was given her triple antibiotics all day, morphine, and Tylenol. What a busy day!!! Tonight she will receive more antibiotics and her TPN (nutrition). Her potassium levels are a little off also so the TPN is critical to help get these levels stabilized.
It is so unbelievably hard to watch Taylor right now. I haven't seen a smile in days. She got really mad at me tonight because I made her get up to take a bath....I actually somewhat enjoyed her tantrum because at least she wasn't just laying in bed staring at the walls!!!
I still hope that we wake up tomorrow to 2010 and have no fevers or pain. I would also be thrilled if her ANC was not at zero but I doubt it that will happen. She has no evidence at all of starting to trend up.
Enough for tonight....we have a long night of peeing ahead of us!!
Have a safe and Happy 2010.
P.S.....I am so not a doctor so if the information above regarding the albumin is not exactly right...I apologize...it is all so confusing and even more confusing on only a couple of hours sleep!!!
Happy New Year.
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Happy New Year, Kristen. You have been consuming my thoughts the past few days. I have been reading the blog regularly and of course getting updates from Renee. We keep praying! You are an amazing mom, probably the best ever. Love, Sarah
ReplyDeleteHappy New Year, guys. At the stroke of twelve I prayed for a good year for you. I prayed for 2010 to be free of pain and Tay to be healed asap. Your strength amazes me, Kristen. Hugs and kisses to you guys. Love Kelly and Carly
ReplyDeleteKristen--My 2010 wish is for your family to get some relief and great health and for all of you to be together. It just has to start getting better. Enough is enough!! From our family to yours, many blessings for the new year. Taylor--stay strong--you are an amazing beautiful little girl! Carole B.
ReplyDeleteHere's to a healthy 2010. I can't wait til this round is a distant memory for you you all...hang in there!
ReplyDeleteKrista
Kristen,
ReplyDeleteWe hope with the New Year Taylor's health starts to trend in a positive direction. The Souza Family has been through so much in 2009 and our hearts continue to pray for you all. Here is to a healthier and happier 2010!
Always in our hearts,
Jenn, Brad, Addy and Chase
dear taylor,
ReplyDeletei hope you feel better soon. im going to send you a surprise in the mail.
love,
emily
Kristen,
ReplyDeleteWishing your family and Taylor a healthy and Happy New Year. After every storm is a beautiful rainbow. I'm waiting for it to appear. You and your family are amazing! You are in my thoughts.
Sonja