Loving Taylor

• Well....the fun has really started!!! Taylor spiked a fever in the middle of the night. Blood cultures were drawn and 3 antibiotics (triples) were started. She woke up feeling terrible. She is absolutely miserable. She lays in bed and moans. She doesn't even want to get up and go to the bathroom. She asked me to put her back in diapers today....she says she hurts too much to get up. After fighting with her this morning, I finally got a dose of Tylenol in her (she hates Tylenol!). She seemed to feel a little better after the Tylenol and wanted to lay on the couch instead of in bed. This only lasted for a short time before she wanted to go back to bed. Her fever started creeping up again and she is hovering around 103. Because of the fever her heart rate is very high....around 184 all day...not good!! She also has gotten mouth sores on her tongue. She has about 5 of them and her tongue is red and swollen. She won't eat because of it and when I forced her to do her mouth care, you could hear hear screaming down the hall. It burns her tongue but it is the only thing that will help heal them. She also has a paper cut on her finger that is red and swollen. Luckily the antibiotics should help heal this also.

For the past 4 rounds whenever she has gotten a fever, no bacteria have ever grown from her cultures. She has always gotten over the fever in a day or so but I just found out that this time, a gram negative bacteria has grown back already. This means she has bacteria in her blood and central lines. Luckily, the antibiotics that she is already on should cover the bacteria. We will know more in the am. For now, she needs to sleep, sleep, sleep. We will most likely give her a dose of morphine tonight for her tongue.

On top of everything with Taylor, Savannah threw up again last night. She continues to cough so I still can not go home and see her. My dad and Sean can also not come down to visit Taylor because of Savannah being sick. This just S-----!!!

Because Taylor's fever's are not controlled and she is positive for bacteria, we will ask that we have no visitors until she gets a little better. With her counts still at zero, it is too risky. Thank you for your understanding.

Last night we only slept for a couple of hours and I have a feeling tonight is going to be just as bad so I am off to crawl into bed with Taylor and try to sleep.

Thanks,
Kristen