Taylor had another tough day. Her stomach is really bothering her and she has developed a really bad rash from going to the bathroom so much. She is eating again but everything seems to go right through her due to the C-diff. Poor little thing......even though, I know she doesn't feel well, she tried her best to have some energy to play. She had little bursts of energy and tried to do a little.
Her counts went up again a tiny bit today. They are hoping we might be home by Thanksgiving but we will definitely be back in for Christmas. She said today, "mommy, I will stay here for Thanksgiving, I just want to be home with my sister for Santa!!" It simply breaks my heart they will be separated on Christmas.
She and her friend Leo Weber talked on the phone today. He is downstairs on the 2nd floor getting another round of chemo. They were so cute on the phone. We looked at pictures of Leo on his caringbridge site and Taylor said, "Mommy, he's so cute!!!" I was teasing her that Leo is her boyfriend and she was giggling....it was wonderful to see her laughing!!!
That is all for tonight. Once again, I am just so tired....
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You both are in my thoughts and prayers! All my love!
ReplyDeleteLindsau S.
You both are in my thoughts and prayers! All my love!
ReplyDeleteLindsay S.
Desr Kristen,
ReplyDeleteAs always thanks for sharing your times and thoughts with us. We are praying always for you guys. Carly sends a huge hug and kiss to Tay Tay. Love Kelly