Donations can also be made at any Wells Fargo branch:
Project Souza Family
Account number 186-527-1579
Or you can mail a check to
Souza Family
PO Box 28272
Scottsdale, AZ 85255

This blog was created by friends as a way for the Souzas to share Taylor's progress with us. Kristen and Sean have not asked for financial help, but their medical bills coupled with Kristen's loss of income is truly overwhelming. They are so appreciative of ALL of the different types of support they have received and are more grateful than you can know. Thank you!
Taylor is a beautiful, vibrant three-year-old girl who was recently diagnosed with acute myelogenous leukemia, a fast-growing cancer of the blood and bone marrow. On June 18th, Taylor began an 8-10 month hospital stay. This blog will detail her journey back to good health!


Friday, January 8, 2010

I feel like a broken record. Last night brought more of the same. The positive aspect is that even though she is still having fevers, they are becoming less frequent. Obviously the goal is to be afebrile but at this point I will take less frequent. She is still having vomiting and diarrhea and has horrible stomach pain. Her counts did come up again today so hopefully some of her own infection fighting ability coupled with the 5 antibiotics/antifungal medications she is on will start making a difference. Normally the magic number to be released is an ANC of 250 but that will not be in effect for Taylor this round. She will have to go without fevers for a couple of days and then they will gradually remove 1 antibiotic at a time. She will also have to have days of no diarrhea and vomiting and be able to tolerate food. So....we are at Day 33 today and think we have quite awhile left.

Now....for the update on the CT. I talked to Taylor's primary oncologist about the 2 nodules that were evidenced on the CT earlier this week. Because of the size of the nodules (small), there is no way at this time to tell what they are. There is a good chance they could be fungal balls which are very dangerous. They do not think at this time that the cancer has metastasised but there is also no way to be sure. So, the plan is to wait and re-do the CT in a couple of weeks to see if the nodules are big enough to determine what they are. If for some reason Taylor would get worse in over the coming days, they would immediately repeat the CT to see if they have grown. This is all extremely scary. A fungal infection is not what we need right now. Please pray that the nodules are something that Taylor responds to treatment.

Taylor had a dressing change today and had a really rough time with it. She is at her breaking point with all that she can take. It is just too much to go through. She is also getting packed RBC right now so at least she is sleeping. Sleep seems to be her only time of peace right now.

I am off to try to catch up on some calls and email. Have a good night.

5 comments:

  1. When you said this would be the toughest round...you weren't kidding! My heart breaks for you and Taylor. It is more than you both should have to go through. Your strength amazes me every night that I read your posts. Sending more prayers your way!

    Krista

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  2. I hope tomorrow is a better day, and the next day better than that. Praying for a strong upward trend!!!

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  3. Thinking of you all and hoping that this weekend Taylor's fever finally goes away and her stomach is feeling better. We will continue to hope for good news about the nodules and that they resolve with current treatment.

    We wanted to let you know that we received our copy of Hearts Connected today and it is beautiful.

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  4. Dear Taylor,

    I hope you feel better! I want to come play with you one day soon! I have a new remote controlled dinosaur named Spike that I want to show you. He can roar and walk. I like chocolate chip cookies, do you? I know how to bake them, when you are all better I will bake cookies with you.

    I love you, feel better.

    Your friend,
    Nate T

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  5. Hi Taylor!

    Just wanted to let you know that today Harrison and Holly went door to door selling cookies, fruit and drinks with some neighborhood friends to raise money in your honor~ they raised over $9 and are going to hit another block tomorrow. Totally their idea.

    We are thinking of you always!

    Lots of love,

    Amy, Gary, Harrison and Holly Neiss

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