Loving Taylor

Once again there is alot going on with Taylor. It started last night around 10:00 when her RN went to give medication in one of her lumens. Taylor has a double lumen broviac which means her central line has 2 lines to give medication. When her RN went to give her medication in one of her lumens it had gone bad and could not be used. Taylor is receiving so many medications right now that they have to be able to access both lines. The IV team was called and they were able to repair the lumen without having to replace the entire Broviac....good news. It took a long time and we were not able to get to bed until around 2:00 am. Then we were back up again around 3:00 because she spiked another fever and she needed Tylenol. So...it was a long night.

Today was much of the same - fevers, belly pain, diarrhea and retaining of fluid. There is some good news. All of the test that they ran yesterday (Influenza, RSV, C-diff, parasites, fungal studies, etc) are all negative. Taylor's blood pressures have also stabilized which is awesome news. The doctors also feel that she is less likely to go septic at this point. This could all change very quickly but they feel that she is more stable at this point.

So...the question remains why is Taylor on Day 10 of fevers and severe belly pain? Why is she retaining fluid? The answer that I received today was most likely because she is SO severely compromised from all of the chemotherapy that her body is having a really hard time recovering. They do think that this is somewhat "normal" for AML and from the strong doses of chemotherapy that she has received over the last 6 1/2 months. All I can do is pray they are right because watching Taylor over the last 10 days be so sick has been absolutely excruciating.

I am trying to focus on today being a little better but as I watched Taylor receive another platelet transfusion, beg for pain medication, have severe diarrhea, and cry because she still feels so "yucky" it is hard to be positive. But...I try....

I am off to get some sleep. I have only had about 5 hours over the last couple of days...