Donations can also be made at any Wells Fargo branch:
Project Souza Family
Account number 186-527-1579
Or you can mail a check to
Souza Family
PO Box 28272
Scottsdale, AZ 85255

This blog was created by friends as a way for the Souzas to share Taylor's progress with us. Kristen and Sean have not asked for financial help, but their medical bills coupled with Kristen's loss of income is truly overwhelming. They are so appreciative of ALL of the different types of support they have received and are more grateful than you can know. Thank you!
Taylor is a beautiful, vibrant three-year-old girl who was recently diagnosed with acute myelogenous leukemia, a fast-growing cancer of the blood and bone marrow. On June 18th, Taylor began an 8-10 month hospital stay. This blog will detail her journey back to good health!


Wednesday, January 13, 2010

A very quick post as I am so tired I am having a hard time staying awake. A minor complication caused me to stay up the entire night last night. Taylor's temperature actually dropped well below normal which can also be a sign of infection or sepsis. So, her temperature was checked almost hourly along with her blood pressure. Her temperature has normalized today but they have done blood cultures again to rule out any new infection.

Spoke with the doctors on her lung CT. Because one of the nodules got smaller and the other stayed the same, they have decided to watch the nodules for now and see what happens. She is already on anti-fungal medication so she is hopefully covered if they are fungal infections. Good news that no new tests are needed right now, bad news that the nodules are still there and we are not positive what they are.

Taylor continues to be on 24 hour TPN. She is allowed to eat foods now but only takes bites....she isn't really interested in eating and still requires morphine for the stomach pain. She also had to receive another platelet transfusion today. She continues to burn through platelets at a very fast rate.

The plan for discharge is hopefully sometime in the near future...early next week IF.....Taylor starts eating and has no more diarrhea, and has no more fevers, and has no infection that grow back in her cultures. Alot of things have to fall into place before she can go home. Her counts are well above where she needs to be for discharge. Her bone marrow aspiration will most likely happen toward the end of January.

That is all for me.....way to drained and tired!!

6 comments:

  1. Thanks for taking the time to update, even when your exhausted. Negates the need for me to have to stalk you by phone and text!

    I miss that little girl of yours, but glad I got to spend a little time this weekend with the other little girl of yours :)

    Sheri

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  2. Oh my friend, my very tired friend. I wish I could give you a big squeeze thru the blog (and a huge diet pepsi)....I can't imagine how tired you all are. Enough is enough and I know you are WAY past that point.
    I hope you, Tay, Sean and Savannah can find some strength to get thru the next few days. Faith that your 'little' miracle is awaiting around the next corner. And some restful sleep....and when you close your eyes tonight you know there are so many people out there that love you that are thinking of you, and people that have never met you that are praying for you...
    Love and miss you ALL so much!!!
    Big hugs! Jess XOXO

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  3. Kristen...
    We pray you and Taylor have a very PEACEFUL nights sleep. We think of you guys often. Your strength AMAZES me everytime I read the blog.

    Sending "night-night" hugs your way,
    The Windish Family

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  4. Oh Kristen, we are PRAYING that all those ifs come together and Tay gets to go home!!! What a road you have been on. You are one amazing woman. Thinking of you guys always, Kelly and Carly

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  5. I'm so sorry for your exhausting evening... Sounds horrible for both of you! Hang in there...

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  6. Kristen,
    I have been out of touch with the blog, because of the meeting in Phoenix. I am SO happy to hear that there are things going in the right direction the past few days. We continue to pray that she can go home very soon and for a full recovery. You, Sean, Taylor and Savannah are in our thoughts often!

    God Bless,
    Liz-Takeda, CO

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