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Well....we are truly trying to adjust to being back home. You would think it was be the best time ever but it definitely has it challenges. Yes, being home is great but Taylor and Savannah are having a hard time adjusting to being back together. Because they have been apart for the majority of 7 months...they are not used to sharing toys or mommy. Taylor continues to want all of my attention and is very jealous of any one-on-one time I spend with Savannah. I took Savannah to her "talking doctor" this week and Taylor cried most of the morning begging me not to go. The only way that Savannah and I were able to go was that Taylor was sleeping when we left. Taylor is finally sleeping in her own room without waking up so that is great news. All of this will get worked out, it will just take some time.
We had an eventful weekend. We had belated Christmas at our house. Friday was Christmas Eve and Saturday was Christmas Day. Santa and his Elf visited us on Friday night (see picture).....it was a great time. So amazing to see the girls opening presents together and celebrating.
Taylor is feeling ok...very tired. She tries hard to keep up with Savannah but does not have the stamina to do it. She still complains of a stomach ache and threw up once. She has napped most days. Taylor goes back to the clinic on Tuesday to determine her blood counts. She might need a transfusion which would be done in the clinic. I am also hoping to get her bone marrow aspiration scheduled. It is so hard not knowing where we are at with her leukemia. Please continue to pray for remission. We are still not out of the woods yet. Even if Taylor is in remission, she has a very high chance of relapse over the next 2 years....please pray for strength over the next 2 years. There are so many unanswered questions.....
I wanted to thank JT Wamsley and Chris for helping us with Christmas Eve...you made 2 little girls very happy....thank you!!!
Thank you also to Rhonda Rush and all of you who helped with meals over the last 7 months. Rhonda set up the meals for us....thank you so much!!! Having a home cooked meal for Sean and Savannah while Taylor and I were in the hospital was such a treat...thanks to all of you who helped out.
I will update more on Tuesday when we get home from the clinic.....
Kristen, I hope the transition gets a little bit easier each day. I can imagine how hard that must be on all of you! We are praying for remission and still have Taylor on a large prayer list here. Hope Tuesday goes well to!
ReplyDeleteGod Bless,
Liz Olmstead-Takeda
Kristen-
ReplyDeleteI continue to pray for you guys daily. I know it will get easier with each day...hang in there. Thinking thoughts of remission:)
Krista
HI Taylor~
ReplyDeleteWe are soooo excited to hear you are home! How exciting. Of course we always keep you in our prayers and send you good, happy thoughts!
Lots of Love,
Amy, Gary, Harrison and Holly Neiss
REMISSION...REMISSION 4-EVER...we are praying! :) Happy you had a wonderful Christmas!
ReplyDeleteSuzanne
I am so happy to hear that Taylor is home... and though there will be huge adjustments, I hope and pray that it continues to melt back into normalcy... and that this will remain behind as a memory for your family and that normalcy will mean a permanent remission.
ReplyDeleteLisa Pinkus
Addy and I have been reading Hearts Connected almost every night. I was so excited when we finished the book and got to tell her Taylor is now at home with her sissy. We continue to pray for Taylor's remission.
ReplyDeleteIn our thoughts always,
Jenn, Brad, Addy and Chase