Donations can also be made at any Wells Fargo branch:
Project Souza Family
Account number 186-527-1579
Or you can mail a check to
Souza Family
PO Box 28272
Scottsdale, AZ 85255

This blog was created by friends as a way for the Souzas to share Taylor's progress with us. Kristen and Sean have not asked for financial help, but their medical bills coupled with Kristen's loss of income is truly overwhelming. They are so appreciative of ALL of the different types of support they have received and are more grateful than you can know. Thank you!
Taylor is a beautiful, vibrant three-year-old girl who was recently diagnosed with acute myelogenous leukemia, a fast-growing cancer of the blood and bone marrow. On June 18th, Taylor began an 8-10 month hospital stay. This blog will detail her journey back to good health!


Monday, July 27, 2009

Happy Monday to all!! After I posted the blog last night and tried to get Taylor to sleep, our night turned really bad. She started throwing up and threw up over and over again. She was still getting her Zofran (anti-nausea) medication, plus they gave her 2 other medications for nausea. She just couldn't stop throwing up. Finally around 1:00am, she started feeling better. She didn't finally fall asleep until 3:30am. Our roommate right now is a 14 year old girl and the age difference between Taylor and Kendra is proving to be very difficult. Kendra stays up most of the night watching TV and then wants to sleep all day. Hence the reason Taylor didn't fall asleep until 3:30.

She woke up feeling better but very cranky. She played in the playroom and then we had the dreaded weekly dressing change. As you can imagine, the dressing changes don't get any easier....they are horrible and she screams like you can't imagine. Luckily the nurses do it while we are in the hospital....mommy still has to help hold her down!! We made it through and she slept for a couple of hours.

Her counts continue to be OK. Her RBC's are dropping and she will most likely need a transfusion tomorrow. Her chemo rash is just starting again and seems to be a little bit more itchy this time.

All in all, not our best night/day. She is asleep now with the help of Benadryl. Sher needs a good nights sleep (so do I!!).

Hopefully you all saw the picture of Savannah that Sheri posted for me (thank you Sheri). Savannah got to spend a special night with Grandma and go see the Wiggles. I have been so worried about Savannah and the lack of attention that she is getting so thought this would be a special day for her. Grandma said that she had a great time and was dancing in the aisle all through the concert. Thank you Grandma for taking her...you are the best!!!

Since Taylor is finally sleeping, I must get to my other job....work!!! Hope you all have a great night.

Love,
Kristen

3 comments:

  1. Oh Kristen,
    I'm so sad to hear of your hard night/day...sounds like the chemo is being really hard on Taylor's little body. I'm hoping you have a much better night tonight! I hope you are able to get some rest tonight too and turn OFF your work computer (it's a sick day!!)....stay strong my friend, as my friend Karen puts it..your miracle is just around the corner.
    I'm so glad Savannah had fun at the Wiggles-I'm just a hop, skip and a jump away if she needs a buddy to hang with :) I could always use a fresh coat of paint on my nails!!
    XOXO
    Jess

    ReplyDelete
  2. "Ditto" to Jess's ENTIRE message! Hopefully we can see you this week!

    Love,
    Laurie T

    ReplyDelete
  3. Kristen, I saw your last blog and started crying. I cannot even begin to imagine being in your shoes and think every day how brave Taylor is. I guess we have to go through crap at times to reach the sun at the end of it all. We love you and the girls and just be strong and have faith.

    Carole

    ReplyDelete